Prader-Willi Syndrome Association UK

Prader-Willi Syndrome Association UK

Prader-Willi syndrome is a complex genetic disorder, which is present from birth. The Prader-Willi Syndrome Association (UK) is the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS), their families, carers, and the professionals who work with them. It offers a range of services to help families, people with PWS, and professionals in all fields. These include: A wide range of free leaflets on PWS and other publications; Friendly telephone help and support; In-house training; Welfare benefits advice; Representation at case conferences and tribunals; Quarterly News magazine (members only); Special holidays (members only); Reference library; Access to medical experts on PWS; Conferences and events.

Eligibility

Age
For people of any age
Aimed at
Adolescent
Adult
Adult sibling
Child
Child/adolescent sibling
Parent/carer of a child
Parent/carer of an adult
Partner
Professional
Volunteer

Registrations & Approaches

Other specialisms
Challenging behaviour, Learning disability